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Lyme Disease and other Tick borne infections In Oregon
Oregon Lyme Disease Network will work to provide people and local physicians
with current research data on tick borne illnesses, their classical
presentation, variant presentation, current testing procedures available and
resource for testing, and treatment protocols recommended by the International
Lyme and Associated Disease Society, Lyme Disease Association and Lyme Disease
Foundation. We network with these parent Lyme Disease association to
provide the most complete, up to date information for advocacy for the patient.
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According to many Oregon Doctors, lyme does not exist in Oregon.
However according to the CDC (Center of Disease Control) and the NIH
(National Institute of Health) Oregon is "endemic" with Lyme Disease.
*I.
pacificus ticks are found in certain western states, although I.
pacificus ticks infected with B. burgdorferi have been confirmed
by isolation from ticks only in California and Oregon where infection rates
range from 4% to 13.6% (41,42)
...**Cases of Lyme disease are reported through a combination of
passive, active, and laboratory-based surveillance. Lyme disease reporting
was enhanced through laboratory-based or active surveillance programs for at
least a certain portion of Connecticut, Maryland, Massachusetts, Michigan,
Minnesota, New Jersey, New York, Oregon, Rhode Island, West Virginia, and
Wisconsin.
*Burkot TR, Clover JR, Happ CM, DeBess E, Maupin GO.
Isolation of Borrelia burgdorferi from Neotoma fuscipes,
Peromyscus maniculatus, Peromyscus boylii and Ixodes pacificus
in Oregon. Am J Trop Med Hyg 1999:60:453--7.
**CDC surveillance on lyme disease 1992
Tick Borne infection Symptoms and information
Lyme Disease Diagnosis and Treatment
Guidelines
Lyme Disease
Testing
- IgeneX Testing
a CLIA certified laboratory (click
here to download PDF of CLIA certification) which does full band
reporting. CDC proficiency testing above 90% consistently. (Last two 100%
proficiency).
- MDL Testing another
CLIA certified laboratory full band reporting .
- Labcorp NJ - CLIA certified, does not do full band reporting. MUST
REQUEST Western Blot at time of submission.
Issues with Lyme
disease testing
Lyme Disease Assistance Programs (needy meds, mercy
flights, children's funds,etc)
Oregon Prescription Drug Plan- overview:
The 72nd assembly of the
legislature approved SB 875 that authorized the formation of the Oregon
Prescription Drug Program (OPDP). Individual residents who are at least 54 years old,
are at or below 185% of the Federal Poverty Guidelines (in 2005 that is
$17,705 for an individual) and have not had private prescription drug
coverage for at least 6 months.
Children's and Adult Treatment Assistance
- The Ashley Denham Children's
Lyme Disease Fund (Pacific NW)-program funded by Oregon lyme Disease
Network. Serves Oregon children first, additional support given to children
residing in Washington, Idaho and elsewhere.
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Lyme Aid 4 Kids- Program funded by the LDA to help children
regardless of residence
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Oregon Disability Resource Directory
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Children's Health insurance plan (*Oregon)-CHIP-
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Toll Free:
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1-800-359-9517 (Application Center) or |
Oregon’s
Children’s Health Insurance Program (CHIP) is administered by the Oregon
Medical Assistance Program (OMAP), and offers the same benefits package and
choice of carriers and providers as Oregon Health Plan (OHP)/Medicaid. The
program, created and financed primarily by the federal government, has two
major differences from the OHP/Medicaid program it’s modeled after: children
must be uninsured for 6 months (with some exceptions), and it is not an
entitlement program and may have a capped enrollment.
There are no monthly premiums, co-payments, or deductibles in this program
which is for Oregon children, up to 19 who have a household income of 170% of
Federal Poverty Level, and who are not eligible for OHP/Medicaid.
Oregon Drug assistant program http://www.pparxor.org/
Needy Meds
http://www.needymeds.com/pay_programs.taf
The needy medicine program -
http://www.themedicineprogram.com/
Transportation Networks
- Mercy
Flights -
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Angel Flights West - 888-4-AN-ANGEL ( 888-426-2643) -
flights for financially needy patients West Coast departure and
destinations (Alaska
Arizona, California ,Colorado, Idaho, Hawaii, Montana, New Mexico, Nevada,
Oregon, Utah, Washington, and Wyoming)
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Angel Flights America - national angel
flight coverage
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National Patient
Travel HELPLINE can be reached on 1-800-296-1217. It is
available 24 hours a day, seven days a week. Information on this web site
can also help you understand the availability of resources that help
patients in time of transportation need.
- Miracle Flights for Kids: 1-800-359-1711
- Angel Flights National: 1-800-352-4256
Provides air fare for both parents and child
- American Airlines: 1-817-963-8118
Debbie Ryan-AA gives twice-in-a-lifetime free flights for child and both
parents
- Southwest Airlines: 1-214-792-4103
Tracy Martin-Provides two flights per year for child and both parents
- The World Life Foundation: 1-800-289-5433
- National Patient Air Transport Hotline:
1-800-296-1217
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